Still Alice and Alzheimers

I watched the movie Still Alice on my flight to Melbourne.
This particular speech in one of the scene moved me to tears. Sharing it here.
Every spoke word rings true.
I cannot imagine how life can be for someone who knows what lies in front of them as Alzheimers progresses.


The Poet, Elizabeth Bishop, once wrote:

"The art of losing isn't hard to master..."
"so many things seem filled with the
intent to be lost..."
"that their loss is no disaster".

I am not a poet. I'm a person living with Early Onset Alzheimers.
And as that person, I find myself learning the art of losing... every day. Losing my bearings, losing objects...losing sleep, but mostly...losing memories. 
All my life, I've accumulated memories. They've become in a way, my most precious possessions. The night I met my husband...the first time I held my texbook in my hands...having children... making friends...travelling the world.
Everything I've accumulated in life,everything I've worked so hard for...now all that is being ripped away. As you can imagine, or as you know, this is hell.
But it gets worse.
Who can take us seriously when we are so far from who we once were.
Our strange behavior and fumbled sentences...change others perceptions of us...and our perception of ourselves.
We become ridiculous... incapable...comic.
But this is not who we are.
This is our disease.
And like any disease, it has a cause...it has a progression, and it could have a cure.
My greatest wish, is that my children...Our children, the next generation...do not have to face what I am facing.
But for the time being I'm still alive. I know I'm alive.
I have people I love dearly. I have things I want to do with my life. I rail against myself for not being able
to remember this.
But I still have moments in the day of pure happiness and joy.
And please do not think that I am suffering.
I am not suffering. I am struggling. Struggling to be a part of things.
To stay connected to who I once was. 
So live in the moment I tell myself.
It's really all I can do.
Live in the moment.
And not beat myself up to much.
And not...beat myself up too much for mastering the art of losing.
One thing I will try to hold onto though, is the memory of speaking here today.
It will go... I know it will... it may be gone by tomorrow.
But it means so much...to be talking here, today....like my old ambitious self who was so fascinated by communication.
Thank you for this opportunity.
It means the world to me.
Thank you.